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Changing practice in dementia care in the community: developing and testing evidence-based interventions,from timely diagnosis to end of life.

Most people with dementia rely upon community services, from community health care services, general practice, social care services, for their care and support. However, the needs of people with dementia and their carers for information about symptom management and access to services are inadequately addressed at all key points in the illness trajectory, from diagnosis through to end of life care. The EVIDEM research and development programme (2007-12) was designed to change this situation. It was based in the community, and led by primary care, to address the problems that are experienced in and by community services directly. 

The programme aimed to produce tools, techniques and skills that were directly applicable to providing good quality service to people with dementia and their families. Embedding the work in a Mental Health Trust and their partners has allowed us to test these tools, techniques and skills in everyday practice. 

  • EVIDEM:ED-An educational package and electronic support for general practice, combining timely diagnosis and psychosocial support around the period of diagnosis, tested in a randomised controlled trial to measure changes in how general practitioners (GPs) work with people with dementia; 
  • EVIDEM:E-An approach to managing distressing and challenging behavioural and psychological symptoms in dementia using exercise as the therapy; 
  • EVIDEM:C-An approach for managing incontinence in people with dementia living at home; 
  • EVIDEM:EoL-An approach for palliative care for people with dementia, suitable for use in both their own homes and in care home settings; 
  • EVIDEM:MCA-Practice guidance on the use of the Mental Capacity Act 2005, including its use in the protection of vulnerable older people, and; 
  • A greater ability to do research and development work on dementia in the community. 

The experiences and perspectives of people with dementia and their families have guided this programme, and users and carers have been represented at all levels of the programme’s management structure. They have shaped the research work, advised on how it is done and helped make sense of the findings.

This website shows what each of the projects within EVIDEM has achieved, and provides contact details for the project leaders if you would like to know more.

Thank you for your interest, 

Steve Iliffe, Jane Wilcock, Vari Drennan, Claire Goodman, Mark Griffin, Martin Knapp, David Lowery, Jill Manthorpe, Greta Rait and James Warner on behalf of the EVIDEM team.

This Programme is funded by the Department of Health National Institute for Health Research (DH/NIHR) Programme Grants for Applied Research funding scheme (RP-PG-0606-1005). The views and opinions expressed therein do not necessarily reflect those of the DH/NIHR.

Page last modified on 09 may 14 15:42